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80% of Families Haven’t Done This VERY Important Thing… Has Yours?

The unfortunate reality is that only about 20 percent of families have a plan for their family’s future.

That means that 4 out of every 5 families in your parent support group do NOT have a plan for their child or their family.

4 out of 5! 

What about your family?

Are you part of the 20% who feel:

Or are you part of the 80% who feel:

When it comes to having a plan for the future, being part of the majority isn’t a GOOD thing.

If you feel like you’re part of the 4 out of 5, I encourage you to keep reading…THIS POST IS FOR YOU.


How prepared is your family for the future?

Take our self-assessment to see where you’re already well planned and where your family has room to make improvements:


While you may not know me personally, I think you’ll find that my family experiences may be very similar to your own. Growing up with a sister with Down syndrome, our family had to plan differently. Daily activities, a dinner out, or a weekend getaway took more intentional planning for my family than other families. You understand these differences.

So of course, future planning conversations were also different—and often more difficult and complicated. There was just so much to think through and prepare for…

My family’s personal planning journey wasn’t easy.  It took a lot of effort and time. Often, no matter how much we knew we needed to create a plan for my sister and our family’s future, various obstacles and emotions stalled us and derailed our best efforts to plan.

So personally, given my own family’s experiences, I understand. Planning for the future isn’t easy.


Professionally—I talk to many families every day who struggle with the same types of emotions, obstacles, and road blocks throughout their planning journeys.

When I meet a family for the first time, I’m always curious about their past planning experiences. I want to understand how they define “success” for their family and their child with special needs. I want to know the challenges they are striving to overcome. And I seek to learn of any hurdles they are currently facing that are preventing them from planning for an abundant future for their entire family. 

After 10+ years of serving families, I’ve found that the following five common reasons explain why many families don’t have a plan for the future:

1. Negative Previous Experiences with Planning

2. The Cost of Planning

3. Information Overload When it Comes to Planning

4. Feeling Overwhelmed and Confused by the Planning Process

5. Skeptical the Planning will actually HELP their Family


What about you?

Can you relate to any of those thoughts or feelings about Special Needs Planning?


All of these reasons for not planning came directly from the families I serve—who are very much like my own family. If I’m being honest, my own family struggled with many of these same thoughts and emotions as we attempted to plan for the future.

I keep coming back to this statistic:

80% of families don’t have a plan for their family’s future.

Being a Special Needs Planning consultant, I struggle with that reality. I believe so strongly that everyone needs to plan. I’ve seen first-hand the devastation that can occur when a family DOESN’T plan for the future.

Far too often, families share with me that their son or daughter—who phased out of the school system decades ago—has been sitting at home bored and depressed for years. They lack purpose and motivation. When their child was younger, planning for the future seemed so distant and not pressing that they could simply put it off until a later date… But then they blinked—and so much time had passed them by. Now they realize they should’ve planned sooner…

That’s a tough situation to hear about, for sure. Knowing that someone has spent years of their life without purpose or direction.

But the calls that I dread the most come from family members after an unplanned and unfortunate life event has happened. For example, a key caregiver, decision maker, or guardian has passed away. The family never discussed what to do when that happened. No one had any instructions for how to care for their loved one with special needs and there were no financial means to provide even the most basic life necessities. Now, in the midst of grief and uncertainty, these family members and/or friends were finally reaching out for help planning because they were scrambling to figure out how they could possibly provide the needed care and support for their loved one.


My family also struggled with planning. But we persevered and today my sister is thriving. She’s proud of how she’s able to positively impact the lives of others every day.

I’ve seen firsthand how planning can WORK.

It really can make a difference in our loved one’s quality of life.

My mission at ENABLE is to give hope to families that their children can live purposeful, fulfilled, and happy lives. Our team strives to provide families with peace of mind through planning—the clients we serve know that their entire family’s future is well planned for no matter what might happen in the future.

I know that every family wants that. You want that!

But I also understand that planning can seem overwhelming, frustrating, and confusing. It can be daunting to find someone you can trust who really understands your family’s unique needs.  That is why I created ENABLE.

Guided by an expert team of special needs planning consultants, our planning process makes it easy, efficient and affordable for families to overcome obstacles and plan for abundant futures for their entire family, including their loved ones with special needs.

Finally, there’s a way to:

At ENABLE, we understand you. Because we’ve been there, too.

We’re here and we’re ready to help, when you’re ready to start thinking about planning for the future.

To learn more, schedule a call with our team today!

Take our self-assessment to see where you’re already well planned and where your family has room to make improvements:

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