Families across the country have shared with our team that they know that they need to plan for the future. They’ve been reminded of that reality over and over again by well-meaning professionals. But these families often share with us that they feel stuck in their current circumstances and incapable of moving beyond that to begin the planning process.
Through personal family experiences (having grown up with a younger sister with Down syndrome), I understand that there are so many emotions that arise as families think about and plan for the future. Overwhelm. Confusion. Frustration. Worry. Fear.
I understand the seemingly never-ending checklist of tasks that parents of a child with special needs have to accomplish… with so much urgency and often fast-approaching deadlines.