5 Reasons Families Don't Create A Special Needs Plan

5 Reasons Families Don’t Create A Special Needs Plan…And What To Do About It

Families across the country have shared with our team that they know that they need to plan for the future. They’ve been reminded of that reality over and over again by well-meaning professionals. But these families often share with us that they feel stuck in their current circumstances and incapable of moving beyond that to begin the planning process.

Through personal family experiences (having grown up with a younger sister with Down syndrome), I understand that there are so many emotions that arise as families think about and plan for the future. Overwhelm. Confusion. Frustration. Worry. Fear.

I understand the seemingly never-ending checklist of tasks that parents of a child with special needs have to accomplish… with so much urgency and often fast-approaching deadlines.

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Family Photo with Special Needs Member

The Biggest Planning Mistake Our Family Made…

Written by: Phillip C. Clark, Founder and President, ENABLE Special Needs Planning

We had the best intentions…

Our family had the best intentions. We strived to create a great future for my younger sister, Sarah, who has Down syndrome, no matter what future events would transpire. For weeks, we endured many hours of emotional conversations. We thoroughly hashed out all of the precise details of our plan. We thought through every pitfall, evaluated every potential problem, and developed strategies to overcome such obstacles so that Sarah could live a purposeful, impactful life.

But we forgot one essential part of the planning process…

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Special Needs Planning: How Should We Measure Success?

Phillip C. Clark, Founder & President, ENABLE Special Needs Planning
Phillip C. Clark, Founder & President, ENABLE Special Needs Planning

Written by: Phillip C. Clark, Founder & President, ENABLE Special Needs Planning

In today’s culture, images and stories of success are at our fingertips 24/7 through social media. It’s easy to get caught up in comparing ourselves to others.

On the one hand, social media can be a source of inspiration and motivation, showing us pictures of other people succeeding in areas in which we aspire to be successful, too. On the other hand, we could look at those same photos, and feel like we don’t measure up…and we never will.

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Special Needs Planning: Why the Traditional Planning Industry has it ALL BACKWARDS

Author: Phillip C. Clark, Founder and President, ENABLE Special Needs Planning, LLC

 

Consider these statements…

  • “My child won’t ever be able to do ____.”
  • “We need to figure out how we are going to support our child when we, as parents, are gone.”
  • “How can we make sure our government benefits cover all of our expenses?”
  • “We have to make sure you have a sound strategy to fund your Special Needs Trust.”

These statements–uttered by both parents and professionals–are made daily because my industry has made special needs planning into a process that is focused on keeping families stuck with limited expectations and a limited mindset about the future.

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Meet Julia and Michael

One of the joys of having my sister, Sarah, in my life is the ability to connect with others who share similar passions through our unique life experiences. I am always encouraged when I meet other siblings who feel just as proud of their brother or sister as I do of Sarah. Down syndrome has brought so many people into our lives—people from across the country that I wouldn’t have otherwise connected with. I’m thankful for the community of individuals that I’ve met that strive to create an abundant life for our loved ones.

I’d like to introduce you to Julia. Many of you might know her from her Instagram handle:

@beyond_the_waves_blog

If you haven’t, make sure you follow her on Instagram and check out her blog.

A few weeks ago, I was able to Continue reading “Meet Julia and Michael”